Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE
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| Định dạng: | Sách |
| Ngôn ngữ: | English |
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Springer
2023
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| Truy cập trực tuyến: | https://link.springer.com/article/10.1186/s12890-023-02336-4 https://dlib.phenikaa-uni.edu.vn/handle/PNK/7127 |
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oai:localhost:PNK-71272023-03-24T03:12:17Z Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE Gizal, Nakshbandi Catharina C., Moor Katerina, Antoniou Pulmonary fibrosis PROMs CC BY Pulmonary fibrosis (PF) is caused by a heterogeneous group of diseases, with a high inter-individual variability in disease trajectory. Identifying disease progression in patients with PF has impact on clinical management decisions. However, strategies to early identify and predict disease progression for these patients are currently lacking. In this study, we aim to assess long-term FVC change in patients with PF measured with home spirometry, and evaluate the feasibility of a multinational patient-led registry in PF. In addition, we will assess validity of patient-reported outcomes (PROMs) for the different subgroups of patients with PF. 2023-03-24T03:12:17Z 2023-03-24T03:12:17Z 2023 Book https://link.springer.com/article/10.1186/s12890-023-02336-4 https://dlib.phenikaa-uni.edu.vn/handle/PNK/7127 en application/pdf Springer |
| institution |
Digital Phenikaa |
| collection |
Digital Phenikaa |
| language |
English |
| topic |
Pulmonary fibrosis PROMs |
| spellingShingle |
Pulmonary fibrosis PROMs Gizal, Nakshbandi Catharina C., Moor Katerina, Antoniou Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE |
| description |
CC BY |
| format |
Book |
| author |
Gizal, Nakshbandi Catharina C., Moor Katerina, Antoniou |
| author_facet |
Gizal, Nakshbandi Catharina C., Moor Katerina, Antoniou |
| author_sort |
Gizal, Nakshbandi |
| title |
Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE |
| title_short |
Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE |
| title_full |
Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE |
| title_fullStr |
Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE |
| title_full_unstemmed |
Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE |
| title_sort |
study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring i-file |
| publisher |
Springer |
| publishDate |
2023 |
| url |
https://link.springer.com/article/10.1186/s12890-023-02336-4 https://dlib.phenikaa-uni.edu.vn/handle/PNK/7127 |
| _version_ |
1761278339912302592 |
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8.891145 |