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Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE

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Bibliographic Details
Main Authors: Gizal, Nakshbandi, Catharina C., Moor, Katerina, Antoniou
Format: Book
Language:English
Published: Springer 2023
Subjects:
Pulmonary fibrosis
PROMs
Online Access:https://link.springer.com/article/10.1186/s12890-023-02336-4
https://dlib.phenikaa-uni.edu.vn/handle/PNK/7127
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spelling oai:localhost:PNK-71272023-03-24T03:12:17Z Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE Gizal, Nakshbandi Catharina C., Moor Katerina, Antoniou Pulmonary fibrosis PROMs CC BY Pulmonary fibrosis (PF) is caused by a heterogeneous group of diseases, with a high inter-individual variability in disease trajectory. Identifying disease progression in patients with PF has impact on clinical management decisions. However, strategies to early identify and predict disease progression for these patients are currently lacking. In this study, we aim to assess long-term FVC change in patients with PF measured with home spirometry, and evaluate the feasibility of a multinational patient-led registry in PF. In addition, we will assess validity of patient-reported outcomes (PROMs) for the different subgroups of patients with PF. 2023-03-24T03:12:17Z 2023-03-24T03:12:17Z 2023 Book https://link.springer.com/article/10.1186/s12890-023-02336-4 https://dlib.phenikaa-uni.edu.vn/handle/PNK/7127 en application/pdf Springer
institution Digital Phenikaa
collection Digital Phenikaa
language English
topic Pulmonary fibrosis
PROMs
spellingShingle Pulmonary fibrosis
PROMs
Gizal, Nakshbandi
Catharina C., Moor
Katerina, Antoniou
Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE
description CC BY
format Book
author Gizal, Nakshbandi
Catharina C., Moor
Katerina, Antoniou
author_facet Gizal, Nakshbandi
Catharina C., Moor
Katerina, Antoniou
author_sort Gizal, Nakshbandi
title Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE
title_short Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE
title_full Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE
title_fullStr Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE
title_full_unstemmed Study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring I-FILE
title_sort study protocol of an international patient-led registry in patients with pulmonary fibrosis using online home monitoring i-file
publisher Springer
publishDate 2023
url https://link.springer.com/article/10.1186/s12890-023-02336-4
https://dlib.phenikaa-uni.edu.vn/handle/PNK/7127
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score 8.891145

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